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Healthcare

on Monday, 24 June 2013. Posted in Menu Items

Every disabled child has the same right of access to generic health services as anybody else, and the Child Health and Disability Teams in Cardiff and the Vale can
help to support this access. GP’s are increasingly acting as the primary core of the health service, able as they are to refer people to any service which they feel may be appropriate.

In the case of young children who are suspected of having a learning disability, the child’s doctor, in consultation with specialists, such as health visitor attached to the practice, may refer the child to a Special Needs Health Visitor, the Children’s Centre, the Community Child Health Service or the Child Development Service for assessment and care.

Special Needs Health Visiting Service

Specialist Health Visiting Service is available to all children with special needs in Cardiff and the Vale of Glamorgan.

The aim of the Special Needs Health Visiting Service is to work in partnership with families
and children with Special Needs within a multidisciplinary and multi-agency framework, to
provide support and relevant information to enable them to make informed choices in
relation to their child’s care

The Special Needs Health Visitor are frequently the named health key worker for the child with disabilities and his/her family. They assist in co-ordinating health and social care for the child and family, and have the necessary experience to recognise the potential social and emotional consequences of a disability on family members, and to anticipate and respond to the needs and the problems.
Referral Criteria:

  • Children who have a moderate to severe learning disability
  • Children who have moderate to severe physical disability
  • Children with severe speech and language disorder
  • Children who have Autistic Spectrum Disorder

Referrals are accepted for all children who meet the referral criteria. A referral should be made directly to the Special Needs Health Visitor that covers the geographical area the child lives in.

Contact:
Melanie Williams
Special Needs Health Visitor Co-ordinator
Children’s Centre
St David’s Hospital
Cowbridge Road East
Cardiff CF11 9XB
Tel: 029 2053 6813
Clare Naylor and Jane Thomas: 029 2053 6814
Rita Lewis and Pippa Clarke: 029 2053 6812

ClareThomas, Special Needs Health Visitor
Colcot Clinic
Winston Road
Barry CF62 9SU
Vale of Glamorgan
Tel: 01446 744234
Mob: 07966 194 573
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Community Child Health Service - Pre-School

Children suspected of having developmental problems can be seen for a comprehensive
paediatric assessment in a multi-disciplinary way. The service is Consultant led and assesses the child’s development, general health, hearing and vision. This includes carrying out any necessary investigations and making a diagnosis where possible. The Consultant Community Paediatrician leads a multi-disciplinary team which includes clinical psychologists, physiotherapists, occupational therapists, speech therapists, dieticians, orthoptists, audiologists, clinic nurses and special needs health visitors. The aim is to develop a package of healthcare with the family once the child’s needs become clear.

This comprehensive service is based at the Children’s Centres at St. David’s Hospital in
Cardiff or Llandough Hospital, Penarth. Parents/carers can access the service through the family doctor who will refer to the paediatrician for their area.

For further information contact:
The Co-ordinator
Children’s Centre St David’s Hospital
Cowbridge Road East
Cardiff CF11 9XB
Tel: 029 2053 6789
The Co-ordinator
Children’s Centre Llandough Hospital
Penlan Road
Penarth CF64 2XX
Tel: 029 2071 5580/2071 5531

The Administrative Headquarters for Community Child Health are:

Cardiff Community Health Care
Lansdowne Site
Sanatorium Road
Cardiff CF11 8PL
Tel: 029 2093 2675
Colcot Clinic
Winston Road
Barry CF62 9SU
Vale of Glamorgan
Tel: 01446 738358

School Age Children

All children have a School Entry Health Review by the school nurse and the majority of schools in Cardiff and the Vale have a named doctor and a named school nurse.

Many children with special needs are attending either special schools, or special classes or
units in mainstream schools. Supportive therapies may be provided in special schools as
appropriate.

Special Schools

Have more input by doctors and nurses and some have nurses permanently on site.
Supportive therapies, orthoptics etc have more input to special schools and some have therapies on site.

Queries regarding School Health Service may either be put to the appropriate consultant (for Vale, or Cardiff) or to the School Health Office (Administration).

For further information contact:
Child Health Co-ordinator
Cardiff and Vale University Health Board
Child Health
Lansdowne Site
Cardiff CF11 8PL
Tel: 029 2093 2675

The Community Dental Service provides a service to special schools

Child Development Service

This well established service for preschool children and their families offers a structured
programme of developmental and behavioural advice based on the Portage model,
provided through weekly or fortnightly home visits by a Child Development Advisor
(supported and supervised by a Child Clinical Psychologist). Children can only be referred to the service through their Community Paediatrician.
Referral Criteria:

  • Children who have global developmentaldelay
  • Children with severe speech and language disorder
  • Children who have Autistic Spectrum Disorder with an associated learning disability

For further information contact:
Dr Ruth Paradice
Principal Child Psychologist
The Children’s Centre
St David’s Hospital
Cowbridge Road East
Canton
Cardiff CF11 9XB
Tel: 029 2053 6733
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Cardiff & Vale University LHB – Women & Children Division
Clinical Psychology Service

The Clinical Psychology Service offers support to children with a learning disability, their families and carers. Psychologists work with professional colleagues in Child Health and Disability Teams and provide assessment and management advice with regard to difficulties which people experience in their lives.

Advice is provided on a range of issues which may reflect behavioural, emotional and
developmental concerns. The Service also receives referrals for people who present with
complex difficulties associated with mental health concerns and autistic spectrum disorders
alongside their learning disability.

For further information contact:
Peter Watkins
Consultant Clinical Psychologist
43 The Parade
Roath
Cardiff CF24 3AB
Tel: 029 2067 4040
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Psychologists working with children can also be contacted via the Child Health and Disability Team in Cardiff and the Child Health and Disability Team in the Vale.

Community Nursing

Community Learning Disability Nurses are based in the Adult Community Support Teams.
Community Nurses work directly with clients, their families and carers to promote optimum
physical and emotional health and well being, through assessment, advice and education.
Community Nurses undertake both clinical and case management roles, and work with people with a Learning Disability who have Complex Health Needs including Epilepsy, Mental Health Needs, and Challenging Behaviour.

Community Nurses work closely with all professionals within the Community Team, and
also with colleagues in Primary and Secondary Care Services, to ensure the best delivery of healthcare to people.

For further information contact your local Cardiff Learning Disability Team or Vale
Community Support Team.

Carers - More Information

Carers Hub

Carers Hub

Carers Hub

Throughout Cardiff there are many community Hubs where you can get a wide range of support and advice.

 

There is a Carers' specific Hub in the Vale as well that services carers from both counties

The Carers Trust are based there and you can get a wide range of information and support on issues that affect carers.

For more details look here

 

Financial Support

Financial Support

Carers and Pension

Caring for someone can have a devastating impact on Carers’ longer term pension and Carers need to be aware of their pensions as a result. To be eligible to receive a full basic State Pension, a person must have made a certain amount of National Insurance (NI) contributions towards it throughout their working life. If a person is unable to do this because they are caring for children or for a disabled, ill or frail adult, then the state will credit their contributions. However, this only happens if they claim the right benefits and take the right action.

For more information visit:

www.carersuk.org/Information/Caringforyourpension


For advice and information on all aspects of caring contact:

Carers UK’s Adviceline on:
freephone 0808 808 7777 (Wednesdays and Thursdays 10am-12pm and 2pm - 4pm) or
Email This email address is being protected from spambots. You need JavaScript enabled to view it.

Other financial support

Looking after Someone, a complete guide to carers’ rights and benefits, is available from:

Carers UK Tel: 020 7378 4999

Carers UK’s helpline - speak to an advisor for a full benefits check by ringing the

Helpline on 0808 808 7777

Age Cymru has a huge amount of information on financial support for older people.

Call their free helpline on 08000 223444 or visit
www.ageuk.org.uk/cymru/money-matters

The Pensions Advisory Service is an independent non-profit organisation that provides free information, advice and guidance on the whole spectrum of pensions, including state, company, personal and stakeholder schemes.

Call 0845 601 2923 or
visit www.pensionsadvisoryservice.org.uk

Directgov is an excellent online source of information on benefits and pensions

www.direct.gov.uk/pensions

Carers Direct also provides information on carers’ pensions and other aspects of caring:

www.nhs.uk/CarersDirect

Contact a Family Specialist Benefit Adviser

Tel: 0808 808 3555

Insight app - a great way to stay in touch and active

Insight app - a great way to stay in touch and active

The Innovate Trust has developed an easy to use app for you to download for free,

It allows families to keep in touch and their loved ones to participate in a wide range of activities and workshops

Legislation

Legislation

Disabled Persons (Services Consultation & Representation) Act 1986 section 8

This requires that, during an assessment of a disabled person, the ability of carers who provide substantial amount of care on a regular basis is taken into account.

Carers (Recognition and Services) Act 1995

This Act requires the social services authority (if so requested) to carry out a separate assessment of the carer (a “Carers’s assessment”) at the same time as it assesses the person for whom the care is provided.

The act applies both to adult and young carers regardless of the age of the person for whom they provide care.

It defines the carer as an individual who provides or intends to provide a substantial amount of care on a regular basis. For the purposes of the
Act the term carer includes people who may or may not be a relative, and who may or may not be living with the person for whom they are caring. The Act excludes volunteers who provide care as part of their work for voluntary organisations and anyone who is providing care by virtue of a contract of employment or any other contract. This would include anyone who is providing personal assistance for payment, either in cash or in kind.

Carers and Disabled Children Act 2000

This Act gives carers a ‘right’ to a carer’s assessment if they are aged over 16 years old and are providing or intending to provide regular and substantial care for someone aged over 18 years. Carers are entitled to an assessment even when the person they care for refuses to have an assessment or having had an assessment refuses to accept services.

It also includes the right for parents of children with disabilities to request an assessment

It provides the power to provide services for carers in their own right, following an assessment of their needs as well as the power to charge for those services.

The act introduced Direct Payments (i.e. cash instead of care) to parent carers, carers for their own services and young disabled people aged 16 and 17 years.

The Carers (Equal Opportunities) Act 2004

This places a duty on social care to inform carers of their right to request a carer’s assessment. It also gives the provision for a local authority to
ask another statutory authority or body (such as housing, health, education and other local authorities) to assist in planning the provision of services to carers or to provide services that may enhance the carer’s ability to provide care. The other authority must give the request due consideration.

In relation to work, training education and leisure the Act amends both the Carers (Recognition and Services) Act 1995 and the Carers and Disabled Children Act 2000 by ensuring that carer’s assessments must include consideration of whether carers work, or wish to work, and are undertaking or wish to undertake, education, training or any leisure activity.

Work and Families Act 2006

The Work and Families legislation came in 2006, and allows carers of adults the same right to request flexible working as carers of children. Employers do not have to agree to the request, but must make a good business case if refused.

The Children and Young Persons Act 2008

This requires local authorities to make adequate arrangements for short break provision for Disabled Children. In addition the Welsh Assembly Government has a range of powers to inspect, regulate and issue statutory guidance in respect of local authority services under the Local Authority Social Services Act 1970, the Care Standards Act 2000 and the Health and Social Care (Community Health and Standards) Act 2003. It also has powers to direct the NHS under the National Health Services (Wales) Act 2006.

Carers Strategies (Wales) Measure

In January 2012 the Carers Strategies (Wales) Measure 2010 came into force. This legislation places a duty on the Local Health Boards to lead on preparing and implementing a carer’s information and consultation strategy. For Cardiff and the Vale the lead health Board is the University Health Board (UHB) who working in partnership with several stakeholders including, Vale Council, Cardiff Council, Vale Council for Voluntary Services (VCVS), Cardiff’s
Third Sector Council (C3SC), Third Sector representatives, Carers representatives and additional UHB services have began this work. At current a working group made up of the above have helped the UHB produce a draft outline of the strategy and what will be included.

Strategies will:

  • set out how information and guidance will be provided to carers, that will assist them in carrying out their caring role effectively; and
  • set out how carers will be consulted and involved in decisions affecting them and those they care for.

LHBs are designated as the ‘lead authority’ in the Regulations. They will be required to lead the work to develop and implement the Strategies, working in partnership with Social Services.

‘Carers and their rights: the law relating to carers’, published by Carers UK by Professor Luke Clements.
www.carersuk.org/professionals/order-publications

This fifth edition includes updates based on a number of statutory and case law developments since the last edition, implementation of the Carers (Equal Opportunities) Act 2004 and the Work and Families Act 2006, the impact of the Equality Act 2010 and coincides with the first tangible impacts of the Carers Strategies (Wales) Measure 2010.

We gratefully acknowledge the support of these sponsors

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